Where do you want to live as you age?

Written by Gerry Fioriglio on . Posted in Family Caregivers Blog

Cost of Long Term Care

Cost of Long Term Care











            Have you ever thought about where you want to live the last decades of you life? We all dream of retiring and doing things we might not have had a chance to do when we were so busy working. Maybe travel more? Maybe spend time doing hobbies or volunteering?

That all sounds great as long as you have your health. However, it is a common fact that with age we are more susceptible to some kind of chronic illness, which can change one’s ability to do normal activities of daily living.

A chronic illness is defined as an illness that lasts 3 months or longer and cannot be prevented by vaccines or cured with medications. According to the U.S National Center for Health Statistics eighty-eight percent of Americans over 65 years of age have at least one chronic health condition. Individuals with a chronic illness spend a lot of time and money treating and caring for the chronic illness and their general well being.

A chronic illness can stop a person in their tracks, and naturally begins to the raise a few questions. How you want to live the last decades of your life? Where do you want to live? What does quality of life mean to you?

These are hard questions to answer, especially without the right support or knowledge. So here are some guiding facts from an expert in long term care planning.

  • Statistically, to be cared for in a Nursing Home it will cost the average American between $100,000 to 125,000 annually.
  • For one to one continuous care or live-in care an individual will spend approximately $80,000-$100,000 annually. The difference here is that you have “One to One” care and it’s your own home.

These are the two main options for continuous care. There are more cost efficient choices for individuals who choose to remain in their own home when you bring in care for a few hours a day. This generally costs about $10,000 – $31,000. However this would only be recommended if the individual could be left alone for periods throughout the day.

In-home care is not just the more cost efficient option, it is also proven that individuals who spend the last years of their life at home have an overall better quality of life, emotionally and physically. Therefore they are happier and have fewer complications from the chronic illness.

We know that decisions are best made through planning. Unfortunately, we have seen many individuals or families wait until the time of absolute necessity or a time of crisis to make decisions regarding long term care. You do not have to wait.

Gerry Fioriglio RN, CDP, a Geriatric Care Manager, Certified Dementia Practitioner, and owner of Family Caregivers Network, Inc. help’s individuals every day with making these hard decisions. With over 35 years experience in Home Care, Gerry Fioriglio provides you the with expert advice needed to make these tough decisions. Don’t wait for a crisis to make a decision about long-term care or where to spend the last decades of life. Call Family Caregivers Network today (215-541-9030) or visit them on the web at www.family-caregivers.com, and start the planning process, because we all deserve the best quality of life as we age.

Alzheimer’s and New Clinical Trials

Written by Gerry Fioriglio on . Posted in Family Caregivers Blog

60 Minutes and The Alzheimer’s Laboratory

If you had multiple family members who developed Alzheimer’s would it mean that you would also develop the disease.  In this video, families in Colombia who carry this specific Gene know that their chances of developing early onset Alzheimer’s is 100%.  Watch and learn about new clinical trials are underway to find a cure or at least help us know more about how to stop this life debilitating disease.

To receive more information on how to care for a loved one with Alzheimer’s go to the Alzheimer’s Association website or contact Family Caregivers Network at 215-541-9030.  To find clinical trials go to TrialMatch.

The Unique Challenges of Caregiving for Rare Diseases

Written by Sara Fioriglio on . Posted in Family Caregivers Blog

Caregivers face numerous challenges, some unique to the particular disease or individual they care for, and some more general. Common obstacles such as emotional burnout, maintaining physical and mental health, balancing family/personal time, and being charged with making major decisions for their patient are few instances in which they deal with day to day. Additional challenges arise when it comes to caregiving for those with rare diseases like Ewing’s sarcoma, leukemia and lymphoma, and mesothelioma, an asbestos caused cancer that affects around 3,000 people each year.

With this November being National Family Caregiver Month, we’d like to offer some helpful tips associated with caregiving for rare cancers:

Find a detailed and regularly updated source of information.

While there are many major outlets that provide information on a multitude of conditions, they can’t always include the level of detail that a patient or caregiver would like. Attempting to seek out relevant information and updates can become a hefty job. Finding a resource that can become a one-stop shop for the information you need will save time and stress.

Be prepared to explain the illness.

When you care for someone living with a rare disease you probably don’t expect to have in depth or frequent conversations about the illness. While meetings with doctors and updating family/friends on your loved one’s prognosis seem routine, you may also be bombarded with questions from well-meaning acquaintances. Many people you encounter may not be familiar with the specifics. In order to help cope with these questions, it’s a great idea to create an elevator pitch to help quickly educate those who are looking to learn more.

Seek out support groups.

Finally, caregiving is no small task, and the people charged with this duty deserve all the support they can get. Unfortunately, since there are fewer people diagnosed with these diseases, there are also fewer caregivers who have walked in your shoes. It may not be possible to find people in your area with whom you can connect and share stories. The best option is to look for bloggers or other online communities to find people who are encountering the same experiences. Even if you can’t find a group dedicated to caring for people coping with a specific illness, it can be helpful to seek out communities focused on caregiving in general or groups outside of the health field that can offer emotional support.

National Family Caregivers Month is about celebrating the hard work and dedication of caregivers for all diseases!  If you’re looking for more information be sure to check out the Family Caregiver Alliance.

Article written and supplied in collaboration with the Mesothelioma Awareness Center.